UWF - Medical Informatics - Disease Management and Disease Registries

Important Links

Improving Chronic Disease Care in the Real World: A Step-by-Step Approach
Do-It-Yourself Disease Management
The CDEMS User Network (Chronic Disease Electronic Management Systems)
This site not only lets you download Access databases for your disease registry, but also has downloadable interfaces so you can try to get your lab to upload lab data automatically.
Patient-Provider eHealth Portals for Disease Management and Other Applications []
Disease Management: Overview, Goals, and Philosophy [] - Draft document
MacColl Institute for Health Care Innovation.(2000). Assessment of Chronic Illness Care, Version 3.5. Retrieved from http://www.ihs.gov[]
Congressional Budget Office's Memo/Opinion Regarding Costs of Disease Management
An important historical document.
Improving Chronic Illness Care. The Chronic Care Model.
Kaiser Permanente's program
Chronic Disease in the USA[]
Electronic medical record systems and disease registries[]
DocSite Patient Registries
Kryptiq (Care Manager)
Project popHealth
DocSite
RemedyMD
MAVIQ
PECYS(Aristos Group)
AHRQ Health IT Bibliography (Disease Registries)
Asthma Disease Registry [Excel]

Disease Management Organizations

Important Articles:

Casalino, L., et al. (2003). External Incentives, Information Technology, and Organized Processes to Improve Health Care Quality for Patients With Chronic Diseases. JAMA, Retrieved from http://jama.ama-assn.org []
Epstein, R., & L. Sherwood. (1996). From Outcomes Research to Disease Management: A Guide for the Perplexed. Annals of Internal Medicine, Retrieved from http://www.annals.org [abstract]
Roglieri, J., et al. (1997). Disease Management Interventions to Improve Outcomes in Congestive Heart Failure. The American Journal of Managed Care, Retrieved from http://www.ajmc.com []
Metzger, J. (2004). Using Computerized Registries in Chronic Disease Care. California HealthCare Foundation, Retrieved from http://www.chcf.org []
Simon, J., & M. Powers. (2004). Chronic Disease Registries: A Product Review. California HealthCare Foundation, Retrieved from http://www.chcf.org []
California HealthCare Foundation.(2004). Findings From Provider Organizations Using Patient Registries. Retrieved from http://www.chcf.org []
Colwell, J. (2005). Overcoming Resistance to Disease Management. ACP Observer, Retrieved from http://www.acpinternist.org [html]
Peikes, D., Chen, A., Schore, J., & R. Brown. (2009). Effects of Care Coordination on Hospitalization, Quality of Care, and Health Care Expenditures Among Medicare Beneficiaries. JAMA, Retrieved from http://jama.ama-assn.org []
Lee, B., & K. Forbes. (2009). The role of specialists in managing the health of populations with chronic illness: the example of chronic kidney disease. BMJ, Retrieved from http://www.bmj.com [Full-text]
Dell, R., Greene, D., Anderson, D., & K. Williams. (2009). Osteoporosis Disease Management: What Every Orthopedic Surgeon Should Know. The Journal of Bone and Joint Surgery, Retrieved from http://www.health.nsw.gov.au []
Khan, L., Mincemoyer, S., & R. Gabbay. (2009). Diabetes Registries: Where We Are and Where Are We Headed? Diabetes Technology & Therapeutics, Retrieved from http://www.liebertonline.com [abstract]
Guyatt GH. Evidence based medicine. ACP J Club 1991;114:A16
Als-Neilsen B, Chen W, Gluud C, Kjaergard LL. Association of Funding and Conclusions in
Randomized Drug Trials. JAMA 2003; 290:921-928
Kranish M. Flaws are found in validating medical studies The Boston Globe August 15 2005

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